Our visit to Capitol Hill was priceless

>Sheila Elliott, Colby Elliott’s mom, describes her family’s visit to Capitol Hill to meet Texas state representatives, senators, and their aides during Family Advocacy Days in Washington, D.C.

Thanks to the Elliott family for helping us put a face on the important work done every day at Children’s Medical Center.

We spent the day taking the boys to 10 different members of Congress. We met with Representatives Mike Conaway, Mike Burgess, Sam Johnson and Ralph Hall, Rep. Joe Barton’s aide, Kay Granger’s aide, Senator Kay Bailey Hutchison’s aide, Senator John Cornyn’s aide, Rep. Eddie Bernice Johnson’s aide and Rep. Chet Edwards…. what an absolutely amazing day! PRICELESS! The boys will remember this day for a long time!

I’m proud to say that Colby felt comfortable on Capitol Hill. He even asked Ralph Hall if he had a bathroom, to which Hall replied, “Of course, I do! I’m 87 years old.” Colby proceed to the back of his office and found the door that concealed Mr. Hall’s private bathroom. I reminded Colby to lift the seat and wash his hands.

In all seriousness, our family has had the trip of a lifetime. It was absolutely perfect and was like a dream come true.

Our sweet Colby, who just seven years ago began his journey with his first open heart surgery at 4.8 pounds, is now a 40-pound ball of energy who has sat in the offices of the very important people who make decisions for our country.

My husband and I are so thankful that we made the decision to put Colby in the hands of the specialists of Children’s Medical Center. They gave our child life, and it feels good to stand on Capitol Hill, speaking with members of Congress, representing all of the children and their families.

Today, we conclude our trip with a visit to the National Children’s Museum, where we will continue to remember our son’s journey and celebrate his life.

As we spend this last day in Washington, D.C., we are reminded of all the children who are still fighting for their lives, and for those who are the precious angels among us. Our thoughts and prayers are with you all, and our door is open to anyone who would like to contact our family for questions or support. Thank you for following our journey to D.C.!



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