Young Patient Discusses Symptoms of Medulloblastoma [VIDEO]

 

Vivian Worlein wants to be an artist and veterinarian when she grows up. The team in the Pauline Allen Gill Center for Cancer and Blood Disorders is working hard to make that happen.

After worsening vomiting and balance issues arose, an MRI revealed a brain tumor. Vivian went straight to the Emergency Department at Children’s and underwent surgery the next day.

It is definitely tough going from no physical problems whatsoever to needing hours of therapy every week and not knowing what the outcome is going to be,” says Lyz Worlein, Vivian’s mom.

The team approach has been positive for Vivian, as she sees familiar faces on a consistent basis, helping her to feel safe even when she is undergoing scary treatments.

“I had MRIs, and I was pulled away from my mom,” says Vivian. “I hold a cross that makes me feel better.”

Vivian will complete her ninth and final round of inpatient chemotherapy in October.

Medulloblastoma

Medulloblastoma is the most common malignant brain tumor in children. It is most often diagnosed before the age of ten and is slightly more common in boys than girls.

Symptoms include:

  • Headaches
  • Morning vomiting
  • Clumsiness
  • Problems with tasks like handwriting
  • Double vision
  • Loss of developmental milestones such as an infant who is walking and suddenly regresses to crawling

If the tumor spreads to the spinal cord, symptoms of medulloblastoma may also include:

  • Back pain
  • Difficulty walking
  • Inability to control bladder and bowel functions

resource: Pauline Allen Gill Center for Cancer and Blood Disorders

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9 Responses to Young Patient Discusses Symptoms of Medulloblastoma [VIDEO]

  1. Griselle September 24, 2013 at 8:47 am #

    Hello beautiful. You are doing an awesome job! We are all so very proud of you. My daughter, Valerie Marie, was diagnosed with a medulloblatoma at the age of 6. She was as brave and strong as you are and she’s doing great. She was also treated at Childrens and like you she loves the staff and enjoyed her time at the playroom. She is now 14 (turning 15 in November) and is doing great and in high school! If you ever want to meet her let Dr. Dan Bowers know and he will be able to get our families to connect. God bless you sweetheart.

  2. Judy September 22, 2013 at 3:02 pm #

    Vivian,
    You are an inspiration to me. Your story is amazing and you could not be any sweeter. I know you touch the hearts of everyone you come in contact with.
    God Bless You
    Judy

  3. Mary Jane Hinnant September 21, 2013 at 5:17 pm #

    You are a brave seven year old! I hope that all of your wishes come true. With love, Mary Jane

  4. Margaret September 18, 2013 at 10:24 pm #

    To the Worlein Family,

    Every one of you is an inspiration for the rest of us. Thank you for letting us see how your amazing family has come through this.

  5. Pat Ferguson September 18, 2013 at 7:10 pm #

    Viv, just keep up the good work or works, you can do it. Your grandparents keep me informed of your progress, just keep the progress going and paint some great scenes.

    Pat

  6. Rebecca September 18, 2013 at 3:35 pm #

    That turned out SOOOOO well! Gabe heard about it first – you should have seen how excited he was to tell Jake about our famous fire d who got picked as one of just three kids to get to make a video! You both look beautiful, and Vivian you were SO well-spoken. You are a wonderful spokesperson for Childhood Cancer Awareness!!!

  7. Jill Weatherly September 18, 2013 at 2:52 pm #

    You both did a beautiful job of sharing your life and your heart!
    God Bless you all!

  8. Erin! September 18, 2013 at 2:12 pm #

    Viv –
    You are a very strong girl. I am proud of the progress you are making, and I think you will make a great artist and veterinarian!

    Love you big!
    Erin W

  9. Gary Henson September 18, 2013 at 1:43 pm #

    Vivian,
    You are an amazingly bright and positive young lady.
    I pray that God will keep you ever in his arms.
    I want to see some of your art some day!

    A friend.

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